Clik here to view.
jumped
I stand in the parking lot in front of a nondescript brown brick building in scalding Oklahoma sun. Should I go in? I don’t know who’s inside. Man, woman. My ax murderer. It’s anyone’s guess. “Hospice...
View ArticleClik here to view.
The commish
Football season is upon us. Beers will be had. Bets will be made. Fantasy football leagues will torture wives across the nation. Mark is the commissioner for his fantasy football league this year....
View ArticleClik here to view.
Little coughs, little panic, please go away
“Laila, is he breathing? What’s Eli doing?” “He’s red mommy.” “Is he breathing?” I look at Laila in my rearview mirror. “No,” she says. I whip off the road and into a parking lot, unbuckle and twist my...
View ArticleClik here to view.
Eli, the body slam snuggler in duct tape.
During our vest session tonight I made a video to showcase Eli’s body slam and snuggling skill(z).
View ArticleClik here to view.
Itty coughs knocked about in stop action wigglin’ and shakin’, by Eli
Greetings! Eli is on day 18 of a 21-day round of Bactrim to treat a cough that just wouldn’t stop. He was on antibiotics for large portions of Sept. & Oct. In this latest bout, the Bactrim knocked...
View ArticleClik here to view.
Day 1: Healthy 65 Holiday Challenge! #healthy65
Today is the first day of the #healthy65 holiday challenge! Nov. 10- Jan. 13, do one healthy thing per day of your choosing to participate. It only needs to be related to wellness – the mental or...
View ArticleClik here to view.
#healthy65 Day 3: Off to see the doctor
Making and keeping our doctor visits is important to my fam! Today, Laila took her flu jab like a champ. Eli was a big, brave boy at the Cystic Fibrosis Clinic at Children’s OU Medical Center. Keeping...
View ArticleClik here to view.
Eli breaks the scale
Yesterday I found out that my little buddy is actually more like a big buddy. big buddy in the elevator Tipping the scales at 28.8 pounds at the OKC cystic fibrosis clinic put him in the 90th...
View ArticleClik here to view.
Eli goes to the ER
Hi there. Quick update! We had a hectic night last night. My son turned red and appeared unable to breathe. We rushed to the hospital yesterday afternoon. No time to write. Here’s what happened:...
View ArticleClik here to view.
For a few tense moments, Eli couldn’t breathe: here’s why
Our world went topsy turvy yesterday when my nanny walked into my son’s room to find him on his belly, neck flexed and thick and craned toward the ceiling, face beet red. He wasn’t breathing. She...
View ArticleClik here to view.
Eli feeling much better now!
Eli feels much better now with the help of an antibiotic and breathing treatments. The meddlesome coronavirus appears on its way out. I have dreaded the start of breathing treatments but he adopted so...
View ArticleClik here to view.
Disney’s on a stick, soup’s in the oven
Saving to pay off debt is incredibly fun, said no one ever. I need a carrot, and that carrot is the Magic Kingdom. I will increase savings overall, yes, but part of that goal entails getting my kids to...
View ArticleClik here to view.
Shaking off a cough
Eli started up with a little cough again pretty much the second he got off of his antibiotic from the last go-round. That means he’s spending 1.5 hours a day on his shaking vest and tends to be none...
View ArticleClik here to view.
Feeling better
Quick note: Eli’s 0-to-crud-in-60-second cough has improved a lot. Daily, he is on 1.5 hours of vest, an antibiotic and breathing treatments of Albuterol plus our new treatment, Pulmozyme for a cruddy...
View ArticleClik here to view.
Today, hope
Greetings! Today, I read something hopeful. It’s a blog post by an Australian with cystic fibrosis who writes about her health improvements after taking Kalydeco for the last 2.5 years. The...
View ArticleClik here to view.
The on-the-fence cough
Eli is opinionated about his treatments lately, in the same way most every 2-year-old kid tries to exert a little muscle over his or her world. He runs and hides from the shaking vest these days,...
View ArticleClik here to view.
The Cystic Fibrosis Lifestyle Foundation will pay up to $1,000 for gym...
I went on a walk today at lunch. It included 40 device-free minutes. My mind wandered to exercise. Not my own efforts (or lack thereof in recent weeks) — my son’s. I found out about the Cystic Fibrosis...
View ArticleClik here to view.
The struggle is real. Get a grip.
I’ve haven’t been up for writing about our efforts to save in the face of chronic disease lately. Why?Get a grip We can’t save @#$%. It’s one thing to write about success getting out of the struggle,...
View ArticleClik here to view.
Said no one ever: I love physically restraining my screaming toddler so he...
I love restraining my screaming toddler so he takes his medicine. I love the way he moves his feet because my thigh has his legs pinned down, and it’s all he can do to protest. I love the way he...
View ArticleClik here to view.
And the alarmingly-named bacteria growing in my son’s lungs is…
Streeeeeep aureussss! I’d like to thank my gene pool, Mark’s gene pool and modern medicine, without which, I would never know what was growing in Eli’s lungs. But seriously folks, my son goes to a...
View Article